What does the public believe?

Alzheimer’s disease affects approximately 5.4 million people in the United States. Although there are no proven strategies to prevent the disease, much has been learned in recent years about possible risk and protective factors for Alzheimer’s disease beyond genetics and age. These possible factors include physical activity, diet, social connections, and environmental exposures. In their recent publication, investigators Scott Roberts, PhD, Sara McLaughlin, PhD, and Cathleen Connell, PhD conducted a study to assess public belief and knowledge about risk and protective factors for Alzheimer's disease. They found that older and middle-aged adults are interested in their Alzheimer's disease risk status and believe that steps can be taken to reduce disease risk. 


On November 19-21, 2013, the Brocher Foundation held an invitational workshop, bring together 31 leading researchers and scholars from around the world to explore the issue of feedback of incidental findings and results to research participants. At the workshop, Dr. Scott Roberts presented on "What findings should be offered to research participants whose data and specimens are archived in biobanks? 


At the conference, Dr. Roberts spoke about the ethical and practice issues involving integrating whole-genome sequencing into clinical practice.


On September 18, 2013, the Alzheimer's Prevention Initiative (API) received a NIH grant for their second trial of an anti-amyloid treatment to prevent Alzheimer’s disease.


Publications address ethical and practice issues involved in both genetic testing for neurodegenerative disorders and direct-to-consumer genetic testing.


HBHE Genetics group to play a key role in a major NIH grant awarded to the University of Michigan to explore the use of genome sequencing in medical care.


On April 30, 2013, Dr. Roberts was invited to speak at the Vanderbilt Memory & Alzheimer’s Center Guest Lecture Series in Nashville, TN. His presentation was titled, "Using biomarkers to disclose risk information for Alzheimer's disease: Ethical and psychosocial implications." For more information about the presentation please see the website found here.


Recruitment and enrollment for the REVEAL IV Study has come to an end as of March 2013. Thank you to all who have participated and continue to participate in the study. Check back with us periodically for updates!


HBHE Genetics Research Group Team Members Emily Walsh and Natalie Bartnik will be graduating this May! Emily will be receiving a Bachelor’s of Science degree in Neuroscience from the University of Michigan College of Literature, Science, and the Arts and Natalie Bartnik will be receiving a Master’s in Public Health degree from the Department of Health Behavior and Health Education at the School of Public Health. Congratulations to the both of them!


Watch Dr. J. Scott Roberts, talk about new methods for disclosing the risk for Alzheimer's disease in his video interview at the 2012 Alzheimer's Association International Conference