Providers' knowledge of genetics: a survey of 5915 individuals and families with genetic conditions

TitleProviders' knowledge of genetics: a survey of 5915 individuals and families with genetic conditions
Publication TypeJournal Article
Year of Publication2007
AuthorsHarvey, E. K., Fogel, C. E., Peyrot, M., Christensen, K. D., Terry, S. F., & McInerney, J. D.
JournalGenetics in medicine : official journal of the American College of Medical Genetics
Volume9
Issue5
Pagination259-67
Date Published2007 May
ISSN1098-3600
KeywordsGenetic Counseling, Genetics, Medical, Health Knowledge, Attitudes, Practice, Health Personnel, Humans, Internet, Patient Satisfaction, Physician-Patient Relations, Questionnaires
Abstract

Individuals affected by genetic conditions are increasingly likely to seek information about inheritance and risk factors from their primary care physicians rather than a geneticist, but several studies suggest that few health care providers are capable of fulfilling that role or are comfortable doing so. Acknowledging that the adoption of new genetics knowledge and technologies is often patient-driven, we asked affected individuals and family members about their experiences in encounters with a variety of nongenetics-trained health care providers.

Alternate JournalGenet. Med.