Publications and Presentations Database

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Journal Article
Taylor, D. H., Cook-Deegan, R. M., Hiraki, S., Roberts, J. S., Blazer, D. G., & Green, R. C. (2010).  Genetic testing for Alzheimer's and long-term care insurance. Health affairs (Project Hope). 29(1), 102-8. Abstract
Zick, C. D., Mathews, C. J., Roberts, J. S., Cook-Deegan, R., Pokorski, R. J., & Green, R. C. (2005).  Genetic testing for Alzheimer's disease and its impact on insurance purchasing behavior.. Health affairs (Project Hope). 24(2), 483-90. Abstract
Chao, S., Roberts, J. S., Marteau, T. M., Silliman, R., Cupples, A. L., & Green, R. C. (2008).  Health behavior changes after genetic risk assessment for Alzheimer disease: the REVEAL Study. Alzheimer disease and associated disorders. 22(1), 94-7. Abstract
Ostergren, J. E., Gornick, M. C., Carere, D. A., Kalia, S. S., Uhlmann, W. R., Ruffin, M. T., et al. (2015).  How Well Do Customers of Direct-to-Consumer Personal Genomic Testing Services Comprehend Genetic Test Results? Findings from the Impact of Personal Genomics Study.. Public health genomics. Abstract
Linnenbringer, E., Roberts, J. S., Hiraki, S., Cupples, A. L., & Green, R. C. (2010).  "I know what you told me, but this is what I think:" perceived risk of Alzheimer disease among individuals who accurately recall their genetics-based risk estimate. Genetics in medicine : official journal of the American College of Medical Genetics. 12(4), 219-27. Abstract  Download: PDF (310.84 KB)
Krieger, J. L., Murray, F., Roberts, J. S., & Green, R. C. (2016).  The impact of personal genomics on risk perceptions and medical decision-making.. Nature biotechnology. 34(9), 912-8.
Olfson, E., Hartz, S., Carere, D. A., Green, R. C., Roberts, J. S., & Bierut, L. J. (2016).  Implications of Personal Genomic Testing for Health Behaviors: The Case of Smoking.. Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco. 18(12), 2273-2277. Abstract
Christensen, K. D., Roberts, J. S., Royal, C. D. M., Fasaye, G. - A., Obisesan, T., Cupples, A. L., et al. (2008).  Incorporating ethnicity into genetic risk assessment for Alzheimer disease: the REVEAL study experience. Genetics in medicine : official journal of the American College of Medical Genetics. 10(3), 207-14. Abstract
Vassy, J. L., Lautenbach, D. M., McLaughlin, H. M., Kong, S. W., Christensen, K. D., Krier, J., et al. (2014).  The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine. Trials. 15, 85. Abstract
Roberts, J. S., Karlawish, J. H., Uhlmann, W. R., Petersen, R. C., & Green, R. C. (2010).  Mild cognitive impairment in clinical care: a survey of American Academy of Neurology members. Neurology. 75(5), 425-31. Abstract
Lehmann, L. S., Kaufman, D. J., Sharp, R. R., Moreno, T. A., Mountain, J. L., Roberts, J. S., et al. (2012).  Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing. Genetics in medicine : official journal of the American College of Medical Genetics. 14(2), 268-73. Abstract
Chung, W. W., Chen, C. A., Cupples, A. L., Roberts, J. S., Hiraki, S. C., Nair, A. K., et al. (2009).  A new scale measuring psychologic impact of genetic susceptibility testing for Alzheimer disease. Alzheimer disease and associated disorders. 23(1), 50-6. Abstract
Hiraki, S., Chen, C. A., Roberts, J. S., Cupples, A. L., & Green, R. C. (2009).  Perceptions of familial risk in those seeking a genetic risk assessment for Alzheimer's disease. Journal of genetic counseling. 18(2), 130-6. Abstract
Marteau, T. M., Roberts, S., LaRusse, S., & Green, R. C. (2005).  Predictive genetic testing for Alzheimer's disease: impact upon risk perception.. Risk analysis : an official publication of the Society for Risk Analysis. 25(2), 397-404. Abstract
Carere, D. A., VanderWeele, T. J., Vassy, J. L., van der Wouden, C. H., Roberts, J. S., Kraft, P., et al. (2017).  Prescription medication changes following direct-to-consumer personal genomic testing: findings from the Impact of Personal Genomics (PGen) Study.. Genetics in medicine : official journal of the American College of Medical Genetics. 19(5), 537-545. Abstract
Christensen, K. D., Uhlmann, W. R., Roberts, J. S., Linnenbringer, E., Whitehouse, P. J., Royal, C. D. M., et al. (2018).  A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone.. Genetics in medicine : official journal of the American College of Medical Genetics. 20(1), 132-41. Abstract
Green, R. C., Christensen, K. D., Cupples, A. L., Relkin, N. R., Whitehouse, P. J., Royal, C. D. M., et al. (2014).  A randomized noninferiority trial of condensed protocols for genetic risk disclosure of Alzheimer's disease.. Alzheimer's & dementia. Abstract
Roberts, J. S., LaRusse, S. A., Katzen, H., Whitehouse, P. J., Barber, M., Post, S. G., et al. (2003).  Reasons for seeking genetic susceptibility testing among first-degree relatives of people with Alzheimer disease. Alzheimer disease and associated disorders. 17(2), 86-93. Abstract
Eckert, S. L. R., Katzen, H., Roberts, J. S., Barber, M., Ravdin, L. D., Relkin, N. R., et al. (2006).  Recall of disclosed apolipoprotein E genotype and lifetime risk estimate for Alzheimer's disease: the REVEAL Study. Genetics in medicine : official journal of the American College of Medical Genetics. 8(12), 746-51. Abstract
Ashida, S., Koehly, L. M., Roberts, J. S., Chen, C. A., Hiraki, S., & Green, R. C. (2010).  The role of disease perceptions and results sharing in psychological adaptation after genetic susceptibility testing: the REVEAL Study. European journal of human genetics : EJHG. 18(12), 1296-301. Abstract
Khoury, M. J., McBride, C. M., Schully, S. D., Ioannidis, J. P. A., Feero, G. W., Janssens, C. A. J. W., et al. (2009).  The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop. Genetics in medicine : official journal of the American College of Medical Genetics. 11(8), 559-67. Abstract
Koeller, D. R., Uhlmann, W. R., Carere, D. A., Green, R. C., & Roberts, J. S. (2017).  Utilization of Genetic Counseling after Direct-to-Consumer Genetic Testing: Findings from the Impact of Personal Genomics (PGen) Study.. Journal of genetic counseling. Abstract
Roberts, J. S., Barber, M., Brown, T. M., Cupples, A. L., Farrer, L. A., LaRusse, S. A., et al. (2004).  Who seeks genetic susceptibility testing for Alzheimer's disease? Findings from a multisite, randomized clinical trial. Genetics in medicine : official journal of the American College of Medical Genetics. 6(4), 197-203. Abstract
Kopits, I. M., Chen, C., Roberts, J. S., Uhlmann, W., & Green, R. C. (2011).  Willingness to pay for genetic testing for Alzheimer's disease: a measure of personal utility. Genetic testing and molecular biomarkers. 15(12), 871-5. Abstract
Conference Presentation
Roberts, J. S., Karlawish, J. H., Welsh-Bohmer, K., Cupples, L. A., Sutti, S., Le, L. Q., et al. (2017).  Risk Evaluation and Education for Alzheimer’s Disease: Study of Communicating Amyloid Neuroimaging (REVEAL-SCAN).